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Community Voice

WHAT IS COMMUNITY VOICE?

Community Voice provides opportunities for people with cystic fibrosis and their family members to have an active say in the Cystic Fibrosis Foundation's initiatives, ensuring the voice of the CF community is being heard to drive improvements that will benefit everyone impacted by CF.

Under-enrollment is one of the biggest challenges for researchers, and it can slow the development of a potential treatment. Since there are only around 33,000 people with CF in the United States, there is a limited pool of people to draw upon for a clinical trial. That is why it is critical that those who are interested and able to participate find an appropriate clinical trial.

WHAT DO COMMUNITY VOICE MEMBERS DO?

  • Provide feedback through surveys.
  • Participate in virtual focus groups.
  • Serve on committees.
  • Make a difference!

HOW CAN YOU JOIN
Visit CFF.org/CommunityVoice to make your voice heard.

Feel free to e-mail CommunityVoice@cff.org to learn even more about getting involved!