From the Editor's Desk

Have you us yet? (Part II)

In our last issue, we highlighted the exciting things that the Greater New York Chapter was developing in the realm of social media. Not only have things really taken off for our Chapter in the past few months, but for the Foundation on a national level as well. We are happy to share this success with you in a quick social media update!

In September, the American pop band OneRepublic, known for chart-topping hits such as “Apologize” and “Counting Stars” joined the search for a cure with the release of the music video for their hit song, “I Lived.” The video features 15-year-old Bryan Warnecke of Colorado, who has cystic fibrosis. Despite his rigorous treatment regimen, which includes 40-50 pills and twice per day breathing treatments, Bryan is a double black diamond skier, avid skateboarder, long distance cyclist and one of the best hockey goalies in the state.

On the local level, we now have 759 likes on our Facebook page and 626 followers on Twitter. Not to mention our brand new Instagram account which we are using to spread even more CF awareness.

In today’s society, social media is a vital part of our lives, but it plays an especially important role in the CF community. The internet has the ability to bring together a group of people who cannot interact face-to-face out of risk of infection, and it does so in a way that no other mode of communication can quite match up to. If our chapter can play even a small part in this incredible connection, we will feel we have succeeded in something great.

Like us on Facebook: https://www.facebook.com/CFFGreaterNY

Follow us on Twitter: @CFF_GNYC

Follow us on Instagram: CFF_GNYC

Have any questions about our social media? Please reach out to me at (914) 993-1460
or jgalante@cff.org.

Stay Warm!

Jennifer Galante
Managing Editor