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President's Message

Greetings,

It is with great pleasure that I address you all for the first time as the new Greater New York Chapter Board President. I am deeply honored to take on this role and am looking forward to the next two years alongside the new executive committee - Nicholas A Stephens, Vice President, Martin Laiks, Secretary, and Tim Berger, Treasurer. On behalf on the Board, I would like to extend a big thank you to past President, Robert Corti, for his leadership and dedication, as well as the previous Secretary, Matt McGillycuddy, and Treasurer, Tom Lynch.

I am also thrilled to welcome three new members to our Board of Directors - Brad Holmes, Daniella Koren, and John Lim. Brad is a Private Wealth Manager at Merrill Lynch and has a personal connection to CF. He has been involved with Great Strides for 15 years and is currently a member of our Chapter’s Corporate Engagement Taskforce. Daniella is the Founder and CEO of Arches Technology, a software company that helps healthcare providers and organizations more effectively educate, prepare and empower patients and caregivers. As a result, she is well versed in the challenges of living with CF and is extremely passionate about our mission. John is the Founder and CEO of Life in Mobile, a global mobile monetization agency, and as a member of the Corporate Engagement Taskforce, he has been working on a proposal to use his technology to help raise funds for the Foundation. Each of these individuals have a great deal to contribute to the Greater New York Chapter and I am so excited to see the progress we make over the next few years.

Our new Board Executive Committee took some time to think about what important topics we would like to focus on between the Greater New York Chapter and our CFF National Office over the next two years. Some of these ideas include:

  • Spending more time with our Greater New York Chapter cystic fibrosis care centers. Our goal is to better understand the challenges each center faces, and the challenges of the patients and families served by them. We hope to find ways to assist the care centers, patients and families to lessen the burden of the disease.

  • Doing a better job of telling the compelling story of the Foundation. Over the years we have made incredible advancements in research, changing the lives of the CF community. As we continue our mission, we want to reassure all those who have not been helped by Kalydeco and Orkambi that we will not stop until a cure is found for all people with CF.

  • Find ways to normalize seeking mental health treatment. Living with a chronic disease, such as cystic fibrosis, can be emotionally challenging not only for the patient, but for families as well. We want everyone to feel comfortable seeking treatment for depression, anxiety and other mental health issues.

  • Celebrating the wonderful work of our Foundation and the Greater New York Chapter. All the incredible scientific advancements that the Foundation is delivering to the CF community would not have been possible without their unwavering fundraising efforts.

I wish you a very happy and healthy New Year!

Sincerely,

Kate S. Niehaus
President, Board of Directors