CF in the Media

During May, CF Awareness Month, a highly visible Rockefeller Center window display was donated to the CF Foundation by EHE. This installation titled “Reflections of a Disease” depicted individuals with cystic fibrosis performing treatments and had a scrolling screen presenting various facts and information about the Foundation and disease.

NY based agency, Michael Alan Group, created the powerful and attention-grabbing display which featured Brian, Dayna, and Lucyann, three individuals with CF who are involved with the Greater NY Chapter. Each of them generously and selflessly participated in this project to make their invisible disease visible and provide a glimpse into life with CF.

Our chapter worked together with the communications team in Bethesda to send out a "selfie call" on social media. We asked everyone who visited NYC to snap a selfie in front of the window and use #CFawareness. We were happy to see a wide array of photos shared across Facebook, Instagram, and Twitter.